Author Topic: Cripples of BT, need some serious help.  (Read 4832 times)

pokefan548

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Cripples of BT, need some serious help.
« on: 13 October 2023, 01:43:10 »
First of all, I want to apologize if this is a bit heavy for the normal forum content, but I have a hard enough time asking for help on stuff like this, and I'd rather it be with our little community where everyone more or less knows everyone.

Earlier this year, I badly injured my knee at work. There were concerns that it might be a permanent injury, but there was some hope that it might be able to heal. That hope was really what was carrying me these past few months. Unfortunately, this week, I got news that it's no good. My only option left is surgery, and even then I'm staring down the barrel of what might be the lesser of two evils.

Now, I'm less than a month shy of 25, and while I'm not a very sporty person, I've always tried to stay active. Even just theorycrafting builds has often been a project done while pacing around the house with a book in hand, doing laps for hours while I weight options. I enjoyed coming home and playing chicken with the neighbors' dog, and I was hoping one day, if an when I have a kid of my own, I'd be able to teach them how to swim and ride a bike.

Now I'm breaking down every few hours constantly being reminded of things I might never be able to do again, and it hurts like nothing I've ever felt before. I'm not here for sympathy or well wishes, I really need to know, if there's anyone here who's gone through this, how did you cope with having all those doors close on you at the same time? What the hell am I supposed to do now that I'm pigeonholed into only doing things that aren't physically-intensive?
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Daryk

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Re: Cripples of BT, need some serious help.
« Reply #1 on: 13 October 2023, 05:16:29 »
I had a co-worker who had chronic knee problems.  After she finally decided to go with surgery, she's been in MUCH better shape.  Maybe not 100% where she was before, but light years ahead of where she was while her knee was a problem.  Short form: don't give up hope!

Also, short of knee replacement, PRP might be an option.  It's definitely one of those "ask your doctor" things.

Prospernia

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Re: Cripples of BT, need some serious help.
« Reply #2 on: 13 October 2023, 16:30:11 »
I have a broken-neck, from a toddler-injury that left my neck-bones fused together as one.  The doctors said I'd always have terrible stiff-necks, that last for months. Then, I found out if I just go swimming, the stiff-necks go away and as long as I remain active, I've never had a stiff-neck like those, ever again in decades.

So, I suggest swimming.

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Re: Cripples of BT, need some serious help.
« Reply #3 on: 13 October 2023, 19:27:40 »
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Re: Cripples of BT, need some serious help.
« Reply #4 on: 14 October 2023, 00:02:56 »
Get the surgery. My grandfather had a full knee replacement at 70. After years of pain, he could walk again with no problems. At 25, you'll heal a lot faster than he did.

rebs

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Re: Cripples of BT, need some serious help.
« Reply #5 on: 14 October 2023, 05:53:17 »
My stepdad had knee replacement.  He put it off for years and suffered through the pain.  But he had it finally and he told me himself that he wishes he had done it 20 years ago.  And he is totally the kind of guy who more or less does not like admitting that he was wrong. 

So please take this in the spirit that I mean it in - get the surgery.   Recovery is a pain, but you will be so glad you took the jump.

And I'm not exactly crippled currently, just hobbled.  I have a bunyon that is scheduled to be removed in November.  It's all set and it will be done.  Recovery for that is said to be a bee-otch as well, as the doc has to more or less scrape it off of the bone and the joint.  It's like having my big toe severed and reattached. 

I made the decision, you can too!  A knee is worse than a big toe!  Just do it and let us know how it goes.
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elf25s

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Re: Cripples of BT, need some serious help.
« Reply #6 on: 14 October 2023, 08:03:51 »
as folks here had said go with surgery...
rehab will be a pain in rear posterior but dont skip it no matter what.
this goes about 30 years my friend got hurt on the job he got his leg trapped between two pallets because the operator was drunk...his knee broke so badly his foot was on backwards took him 4 months after surgery to get almost full mobility and ability run. and as prospernia said swimming is good activity to recover which my friend had done

so if you get surgery do not skip any rehab after
you sure cannot out run death...but sure as hell you can make that bastard work for it!

Tyler Jorgensson

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Re: Cripples of BT, need some serious help.
« Reply #7 on: 14 October 2023, 10:02:45 »
Dads had problems all his life stemming from a head on collision forty five years ago.

One piece of advice I’ll state is: your body does take time to heal after surgery and/or other procedures (steroid injections and the like). If you do start to feel better after them DO NOT immediately go and resume ‘normal’ activities. Ease your way back into things. My dad did a stupid after one surgery and went and played golf and completely messed himself up ‘because he felt like a million percent’. Now he knows to take a break and rest even if he’s feeling well. Personally thought I would still recommend surgery cause what’s offered today is better than what used to be offered.

However in regards to the original question: as a nerd we are unique in that most of our hobbies are not physical in a major regard. Books and video games can still be an outlet into these passions. Now the way you described your ‘process and hobby’ sounds to me you really like being active mentally and physically which obviously is a problem: one thing I could recommend is researching how others have adapted online (an extreme example being Paralympic athletes). The best part about the internet is that the information is out there.

Now not gonna lie, from everything my dad has told me, it’s gonna be tough. But people out there can and will help (obviously a lot better than my own advice). I’ve got a bunch of dark humor from my dad if you want it. But I will say good luck, and we (as an online community) will try and help if we can, even if it’s only with words.

Failure16

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Re: Cripples of BT, need some serious help.
« Reply #8 on: 14 October 2023, 11:21:41 »
A long time ago, a different lifetime, really, I was severely injured, breaking my leg completely in half to the extent I got the joy of seeing the bottom of my foot whilst hanging upside down sixty feet in the air. There was talk of losing the lower leg completely, or of never walking properly again.

I remember quite clearly that a day after the surgery, which involved numerous rods, pins, and screws, I told the nurse I had to use the bathroom. She kindly told me it was down the hall and then went about her business. I managed to find it and went on to about a year of rehabilitation which included further challenges that others have alluded to. Eventually I was able to walk, but it was certainly a low point in my life, socially, emotionally, and physically.

Later, I went to an appointment to get my new profession back on track and had to hop up the stairs for the intake; whereupon the staff there literally laughed nervously when i came in the door. Soon, though, a kindly older supervisor took me aside and informed me that the only way i would make it into the program was to endure further surgery to remove the metal in my leg.

This was not an option for me, after what I had gone through. So, that particular dream did not work out for me. But I went forward with the basic plan and got to do things that many others in my field never would have had the general opportunities to do in aggregate, to meet the people that were met, to see the things that were seen. Eventually I was running five-minute miles and carrying fifty kilos of gear over ridiculous places and distances--even though to this day I cannot "take a knee" on the leg that was injured. Life works in funny ways, and opportunities abound for those lucky enough to get them and take the chance when they avail themselves.

Much more recently, I received an injury that was life threatening and threatened the retention let alone use of my right hand. This is a problem for someone with a family, that works in a physical and technical field, and that likes to write as a hobby-and maybe-one-day-profession. It is still an ongoing process, but the situation has mostly solved itself.

Now, my situation is obviously quite different from yours. Luck has perhaps played a role in my various recoveries, but I also feel that luck is something that people make for themselves. The salient points are that you must weigh your options and figure out what you want to do. Then aim for that. Listen when people say that rehabilitation is, for some things, a lifelong endeavor, but certainly a mid/long-term proposition.

Have or make trust in your medical team. My broken leg gave me precious little choice in the proceedings, and the infection of my hand did not give me much more, but I was older by then and once lucidity ebbed into focus, I was able to bond with the surgeon who did more than everyone else thought was possible. Still, that nurse's calm minimalization of my plight forced me to do things on my own and believe that it would one day be better. This trust develops instantaneously, in my experience, almost instinctively, but it is a palpable thing. And it is vital.

Having said that, it is chiefly you that will decide how things ultimately turn out. It is your attitude that will demarcate your success or failure. Just as bad news rarely improves with age, neither do injuries. Deference to your medical team preeminent, but do this now, while you are young, and recovery will be more efficacious.

You may think that doors have closed for you--and some may indeed have--but they may open anew in good time, and others will have as well.

And, though we have never met, I believe in you.
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mechnut450

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Re: Cripples of BT, need some serious help.
« Reply #9 on: 14 October 2023, 12:06:46 »
As a person with Cerebral palsy,  I know the having doors closed on you feeling, I stil feel my wife ended our relationship over the fact I not able to go go go(and going downhill) like she does still and my falling down the steps a few times hurting myself. Get the surgery (depending on the type and the rehab time) and your young you shall be fine.
These days it a lot better  than when i was younger. I have a friend that got knee replacement   and after rehab he back to work  but due to the work he did he end up in a manager position and not as active in firefighting  but he said he a lot happier and it does not bother him and he actually making more money and has more free time. (  We joke I need to have a spine and hips deal  for my back pain and leg issues or at least put in some   mecha parts for me. but i know I need to look into something soon  as i falling too much these days and after a few days be like how i bruised that part (from fall).. also you should to do 95% of what  you were before just no lifting entire motors and such lol.

Daryk

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Re: Cripples of BT, need some serious help.
« Reply #10 on: 14 October 2023, 15:43:48 »
Further encouragement: when I tore the cartilage in my hip, the docs eventually told me "it might matter, it might not".  The pain was sufficient to put me off running for five years.  Then I saw a "corrective exercise specialist", who gave me some things to do (technically not physical therapy), to build up the strength around my hip.  After about another year, I started running again.  I've since been up to 16 miles (limited by dehydration, not hip pain), and can even do a mile and a half in under 9 minutes (No 5-minute miles for me, F16!).

Failure16

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Re: Cripples of BT, need some serious help.
« Reply #11 on: 14 October 2023, 16:50:21 »
That speed was long ago, brother. And it was only offered as an example of the strides one can make under adverse circumstances, not as braggadocio.
Thought I might get a rocket ride when I was a child.          We are the wild youth,                                And through villages of ether
But it was a lie, that I told myself                                          Chasing visions of our futures.                   Oh, my crucifixion comes
When I needed something good.                                         One day we'll reveal the truth,                    Will you sing my hallelujah?
At 17, I had a better dream; now I'm 33, and it isn't me.      That one will die before he gets there.       Will you tell me when it's done?
But I'd think of something better if I could
                           --E. Tonra                                                      --C. Love
--A. Duritz

Daryk

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Re: Cripples of BT, need some serious help.
« Reply #12 on: 14 October 2023, 17:36:44 »
Those are some incredible strides, and ones I've never managed... good on you, brother! :)

DOC_Agren

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Re: Cripples of BT, need some serious help.
« Reply #13 on: 15 October 2023, 19:46:05 »
I have watch multiple friends and family go though the surgery route.   the recovery and rehab has kept the mobile.
worse one did, 1 knee at 28, 2nd at 33, Shoulder 40...  Family history of bad joints.

REHAB is the key, and don't be afraid to speak up if you think you are not going in the right way.  And I call it Physical Terrorism, because they will push you to get better.
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JadeHellbringer

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Re: Cripples of BT, need some serious help.
« Reply #14 on: 16 October 2023, 10:08:18 »
From my own experience... get the surgery. Do rehab. Whatever it takes. Because I wish I'd been willing to back when I needed it.

In my case, it was head trauma via hockey, and back then concussions weren't really understood the way they are now- otherwise I'd have treated things VERY differently. I wore the old style goalie mask- the Friday The 13th Jason one, not the modern style full-head one. It gave me better visibility- instead of having those cage bars in front of my face like the modern one, I had a clearer vision forward. If a puck (or stick, or knee, etc.) hit the side or back of my head, it'd ring my bell, but whatever- take a couple of Advil and get back to work. If I miss time, my backup goalie takes over, and if he does really well I might become HIS backup, and that was far scarier to me than any headache.

This all culminated in a night that literally almost killed me- a fake pass that caused me to turn my head, a powerful shot from the blue line instead as soon as I looked away that hit behind my left ear, and almost 30 years afterwards a continued struggle every day to feel 'normal'. Vertigo, dizzyness, headaches, light sensitivity, struggles to focus... it's unpleasant. I had brain swelling that caused surgeons to need to drill a small hole in my skull to relieve fluid pressure- luckily I didn't have baldness as a gene, so that's covered up nicely. But even now in my  mid-40s, I have days where I feel great, and others where I literally can't tie my shoes without needing a few tries. (Side note, part of my Battletech draw aftewards was the mental exercise of working out to-hit numbers, and later the focusing-practice of painting miniatures).

I didn't do a lot of rehab stuff. I didn't follow up with doctors as much as I should have. I didn't even stay off the ice- I was skating and weight-practicing again within a few weeks, against advice, and started in a game (with the full-head mask, I admit) only three months later, despite having trouble going up and down stairs. I didn't want to do any of the weakness-exposing care stuff- I was a macho teen who didn't show any weakness to my teammates, I was a badass and all of that dumb crap.

Don't be that guy. Get yourself taken care of. Get it done sooner than later, do every single ****** thing that doctor says to do to get better, push yourself even when you just don't want to- ESPECIALLY when you don't want to- and with any luck this setback will be a distant memory and occasional ache when it's about to rain by the time you're 30. I wish I'd taken that kind of advice when I needed it. Don't be me.
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DOC_Agren

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Re: Cripples of BT, need some serious help.
« Reply #15 on: 16 October 2023, 15:04:33 »
From my own experience... get  the surgery. Do rehab. Whatever it takes. Because I wish I'd been willing to back when I needed it.

Jade I wish we had Like Buttons because that was well said
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Daryk

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Re: Cripples of BT, need some serious help.
« Reply #16 on: 16 October 2023, 17:09:50 »
Indeed!  Jade, that's the best advice yet! :)

butchbird

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Re: Cripples of BT, need some serious help.
« Reply #17 on: 16 October 2023, 18:37:29 »
As others have said (nothing left to add on that front), there's no other option. Get the surgery and listen to the rehab staff. It's not a lesser evil, it's the only sane option. Don't think, do what you must.

My grandfather fell down a roof while de-icing it. In your 70's ish, braking your back isn't good news. But he was a simple man. Did everything he had to, never started asking himself questions so as not to brood. All he knew was he wanted to walk again. That was all he needed to think of. Despite the severity of the injury, from which most in their 20's never manage to get up from, he learned to walk again. Willpower. He hobbled, but he walked and was 2 years later back spending every waking hour of summer tending his garden and could take his walk during winter with his icepick equipped cane.

Then I had a friend whose passion was figure skating. Broke her knee at 17, thought too much, wasn't serious enough in her rehab, fell into ice cream. Never managed to do much athletics again. These things can take time to heal up and much willpower, the surgery is a life savior but you gotta be ready to save yourself also.

Elmoth

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Re: Cripples of BT, need some serious help.
« Reply #18 on: 17 October 2023, 03:17:45 »
I would also recommend surgery. My cousin had leucemia (or whatever the blood xancer is called in english) and that left him, indirectly, with very bad knees. He was quite the cripple. Until he underwent surgery. He will need to go through surgery  every 25 yeats or so, but he is much better now.

I am diabetic type 1 (autoimmune disease). I cannot eat regularly and have to be aware and alert about my blood sugar level. But the thing is: so what? I do not drink sweet drinks or eat cake. Well, i eat other stuff. And i am generally healthier than other people that do not care about their body because they do not have to. You just learn to cope, shrug and do something else. You will.do the same. We, humans, are extremely resilient. Turn that i to an asset. You probably will do well with surgery and going to the gym to exercise your muscles. If you turn that into a habit you will be in better shape than most people that drop off from their gym after half a month.  Maybe swimming is better. No idea since i a.a bycicle guy. I started really cycling at 34. I am in better shape now than when i was 22 and felt immortal.

I also had a knee injury at 37. Not like yours for sure, but one of those injuries that ground professional sportsmen. It took me 2 years to recover from it. I hated it, but doing the prescribed exercises helped me get back on my bycicle, starting slow first and going back to my previous self eventually.

So all my support and move forward. You took a bad turn in life. We all do at certain points. You can make a comeback and make the best out of it. It might not be immediate, but you can do it.

guardiandashi

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Re: Cripples of BT, need some serious help.
« Reply #19 on: 17 October 2023, 14:23:56 »
I can echo the young and stupid altho mine is a lot more minor than most of the people commenting.

in 8th grade (us) I did a vault and landed wrong. the instructor was all does your neck hurt repeatedly. and I said no.

what I SHOULD have said is my neck doesn't hurt but my lower back hurts like heck.

so I landed just right/wrong on the padded mat, and tucked my head/neck so I landed on my shoulders, but the impact transferred just right up my spine, that nothing much was affected until it got to my lower back.

the good news is no major issues, just some minor low back pain off and on (say a 1-3ish) on the 1-10 scale and a vertebrae that likes to twist a little so a chiropractor wants to adjust it almost every time I go in.

its not horrible and I have lived with it for over 30 years at this point.  like I said in hindsight there are other things I SHOULD have done.

elf25s

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Re: Cripples of BT, need some serious help.
« Reply #20 on: 17 October 2023, 22:44:15 »
most if you are lucky and can get surgery and rehab and pain in majority of cases would be gone.
as for myself its like living on a spit. about 12 years back i had been hit by a car while crossing at the light. flew about 120 ft or about 35 meters plus ended up with few bruises a small bunch of cuts dislocated left hip and fractures all over my spine with some nerve damdge that lets me enjoy pain on scale 1 to 10 about 7 and up with bonus of sometimes not able to tell how hot things are so got few burns thanks to that involuntary airborne trip both legs enjoy giving me pins and needles like if you had sat wrong for a while same goes for my arms mixed with constant pain. apparently fractures did not heal right and grew bone spurs that damaged my nerves so no amount of surgery or meds can fix...was told by few doctors that i will be in pain till i die more than likely and they are surprised that i had not gone crazy from pain and i should not be even moving from amount of pain i am experiencing. oth being struck by lightning when i was a kid apparently saved me from pain that would make me off myself seems that a lot of nerves got fried when i got hit. ohh and yes answer is it was shocking...i lost about 15 minutes of my memory so i remember tripping falling down coming to in a porta shelter on my friends aquaintance farm where we were playing them being furious because i lost my brand new sneakers i worked hard to get...hey i was 12 ok?  after thunder heads passed and rain stopped we found my sneakers...apparently i got blown out of them...ohh and doctors after they looked me over and observation said i was fine,,,but found out later my tolarance to pain had increased which pissed my stepmother off because she could not whip me with a belt and make me scream like she enjoyed...
you sure cannot out run death...but sure as hell you can make that bastard work for it!

rebs

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Re: Cripples of BT, need some serious help.
« Reply #21 on: 13 November 2023, 17:32:36 »
Bunyon removal surgery at 06:30 tomorrow EST.  Wish me a steady recovery, since I know it won't be swift and luck won't have much to do with it.

(Rephrase: Luck better not have anything to do with it since if it does it probably won't be good luck.)
« Last Edit: 13 November 2023, 17:36:27 by rebs »
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Daryk

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Re: Cripples of BT, need some serious help.
« Reply #22 on: 13 November 2023, 19:07:10 »
How about a simple wish for a speedy recovery? :)

rebs

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Re: Cripples of BT, need some serious help.
« Reply #23 on: 13 November 2023, 19:14:14 »
I'll take it.  :smilie_happy_thumbup: But I'm told 6 to 8 weeks before I can return to work, and a few months to be fully healed.  But, I eat a high protein diet with lots of fresh fruit and supplemented by vitamins.  This should all work in my favor when it comes to healing.
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rebs

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Re: Cripples of BT, need some serious help.
« Reply #24 on: 15 November 2023, 13:34:05 »
So it is done...
Playing Guitar On My YouTube Channel:
Current cover tune: "The Wind Cries Mary" (by Jimi Hendrix)
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Daryk

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Re: Cripples of BT, need some serious help.
« Reply #25 on: 15 November 2023, 18:06:19 »
At least you're home! :)

rebs

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Re: Cripples of BT, need some serious help.
« Reply #26 on: 15 November 2023, 18:18:31 »
I'm home tonight, yes.

My mom lives a mile from where I had my surgery, so I spent the day yesterday napping  on her couch and had this for dinner last night, because Mom knows how to grill a NY strip steak like nobody's business!   :smilie_happy_thumbup:
Playing Guitar On My YouTube Channel:
Current cover tune: "The Wind Cries Mary" (by Jimi Hendrix)
https://youtu.be/m6a8wZiCsjM?si=0w7tVOgk7yylNv6a

"Thou shalt not create a machine in the image of the human mind." ~ The Orange Catholic Bible, Dune, Frank Herbert

Daryk

  • Lieutenant General
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  • Posts: 37538
  • The Double Deuce II/II-σ
Re: Cripples of BT, need some serious help.
« Reply #27 on: 15 November 2023, 18:19:44 »
Now you're making me hungry, even if you do prefer your steaks overdone... ;)

rebs

  • Colonel
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  • Posts: 15858
  • Et tu, Brute?
Re: Cripples of BT, need some serious help.
« Reply #28 on: 15 November 2023, 18:21:27 »
Now you're making me hungry, even if you do prefer your steaks overdone... ;)

Pink all the way through.  Those were 2 inch steaks from the butcher! 
Playing Guitar On My YouTube Channel:
Current cover tune: "The Wind Cries Mary" (by Jimi Hendrix)
https://youtu.be/m6a8wZiCsjM?si=0w7tVOgk7yylNv6a

"Thou shalt not create a machine in the image of the human mind." ~ The Orange Catholic Bible, Dune, Frank Herbert

Daryk

  • Lieutenant General
  • *
  • Posts: 37538
  • The Double Deuce II/II-σ
Re: Cripples of BT, need some serious help.
« Reply #29 on: 15 November 2023, 18:25:49 »
I tell the waitresses "chase it across the grill with a match", or "blue" in the REALLY expensive places... sometimes I get what I ask for! ;D

At home, I give them 30 seconds per side to sear (which my wife won't, so *I* cook my steaks)... ;)

 

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